Tuesday, May 21, 2019

Our Little Fighter

Adelyn is now three weeks old! She is such a little fighter. Praise God for how He's been sustaining our sweet baby girl. Here is an update from the past week.

May 14
The neurosurgeon who placed Adelyn's shunt said "I couldn't ask for anything better. This is her best case scenario," while reviewing the newest MRI images of her brain. Her stitches were removed.

After waiting a week for a spot to open up in an over-crowded NICU, Adelyn was instead moved to a pediatric step down unit. Though James and Laura were thrilled that Adelyn was doing well enough to no longer need intensive care, the change to a transitional floor was a hard one.


May 15
We continue to work toward Adelyn's feeding and growth goals with speech, lactation, dietician, occupational, and physical therapists (in addition to the nursing staff).

May 16
The nursing staff in the step down unit begin to equip us to take over Adelyn's care with the goal of bringing her home on Monday! Training in how to operate, replace, clean, etc. her feeding tube is the most challenging part, but with a vision of soon being together as a family of four, we eagerly worked toward the necessary skills. We also got busy creating a nursery of sorts for our daughter's sooner-than-anticipated discharge from the hospital. Adelyn passes a car seat test (meaning she can safely ride in a normal infant car seat).

May 19
Adelyn turns three weeks old! Though we had been preparing to bring Adelyn home on Monday, she spiked a fever on Sunday morning, and plans for her discharge were placed on hold.


Now
Please pray:
1. That Adelyn will quickly recover from her fever and doctors will be able to identify the cause. 
2. That her brain will continue to recover and grow to a healthy state.
3. That her heart surgery incision site would heal completely.
4. That she will be able to digest her meals well, gain weight and meet growth goals, as well as learn to bottle and then breastfeed. May the antacid meds help her feel more comfortable.
5. That James and Laura would be competent and feel confident in all aspects of Adelyn's care.
6. For Owen, as he prepares for yet another big transition in welcoming his baby sister home.
7. For God's provision in all the Rosenbergs' needs.


Help!
Again, please do not underestimate the power of your prayers. The time each of you spend in prayer with us is so valuable! Thank you! Thank you too for the meals, cards, and gifts. So many of you have already helped in significant ways and blessed our family with your generosity! We're grateful.

If you would like to help in other ways, here are three further ideas.

One: If you are local to Durham, NC, you might like to participate in the MEAL TRAIN Laura's sister has set up for our family. Not having to worry about cooking meals every night has been such a relief.

Two: We have made a GIFT REGISTRY for Adelyn. As her hospital discharge nears, we are busy trying to collect all the baby paraphernalia that will help her homecoming feel celebratory! On this registry there is also an opportunity to make a financial gift that will be used toward Adelyn's medical expenses.

Three: If you would like to make a tax-free contribution toward Adelyn's medical expenses, please get in touch and we'll provide you with information about how you can do that.

XOXO

1 comment:

joy-filled-lady27 said...

Continued prayers! Love you all! So happy to see that sweet family picture :)