Earlier this summer it was discovered that Adelyn's aorta had re-narrowed at the place where she'd had her surgery (when she was just five days old). On August 20th, she had a catheterization procedure. The surgeon inserted, inflated, and then withdrew two teeny tiny balloons to stretch that portion of her aorta and break up the scar tissue that had built up. We were in the hospital a day and a half, and then Adelyn was released home.
The procedure was successful, but it was also hard on our baby girl. The anesthesia took a toll on her already sensitive gut, and though her bruising and incision healed quickly, it took her a full week before she could keep a whole meal down. Nevertheless, we are so grateful blood is flowing through her heart more easily now, and it is obvious to everyone that she's just getting stronger and stronger.
One happy outcome of another hospital stay is that the awesome nurse who discharged Adelyn after her procedure is now one of the nurses who visits us at home! She helps care for Adelyn a few hours each week. We are lucky to have someone of her skill level who knows Adelyn as an inpatient--best babysitter ever!
SEE YA' LATER, CARDIOLOGY
Today Adelyn had another marathon heart appointment at Duke. After an echocardiogram, EKG, and checking all her vitals, the cardiologist told us her heart function is excellent. She said,
"This girl is beautiful and doing great. As cute as she is, I don't want to see her for another six months. Get her outa' here, mom. And after that, my hope is we'll only need to check up on her every year or so. I think this sweet heart has pulled through."
THE HARD WORK
Despite all this good news, Adelyn has constant challenges. She will soon need another surgery to place a G tube if she can't show more progress in her eating by mouth goals. And though she is slowly getting stronger, some delays are becoming obvious. Thank you to all who pray for Adelyn Gray--how we treasure the thought that so many of you are beseeching the Father for her health and growth with us!
Prayer Requests
Please continue to pray for Adelyn Gray:
1. Praise God that He has used the physicians at Duke to heal our baby girl's heart!
2. Please pray that Adelyn will make great strides in her eating by mouth goals. We desperately want to see her taking all of her calories by mouth before she is six months old so she can avoid another surgery and the placement of a G tube.
3. Please pray that Adelyn's brain will continue to recover and grow normally. Ask that her left vocal cord will also heal.
4. Pray for Adelyn's strength and development. Please specifically pray she will be able to support the weight of her head soon!
5. Pray that Adelyn will continue to qualify for the programs, therapies, equipment, and nursing she needs to thrive at home, and that these services will be covered by insurance! Pray for the excellent nurses and therapists who assist in her care.
5. Big brother, Owen, started preschool! May that time away from home be a blessing on his heart, mind, and body. (Praise God he doesn't have to be dragged to all the doctors' appointments!)
6. For God's provision in all the Rosenbergs' needs.
XOXO
